The Ministry of Health published the list of members of the National Council for Rare Diseases, with the President of the Genetics Commission of the Ministry of Health, involved in the diagnosis and management of rare diseases, in research projects on rare diseases as the representative of patient associations within the National Alliance for Rare Diseases, vice-president of Eurordis, ePAG chair ERN ITHACACouncil’s president, a University Professor at the “Carol Davila” University of Medicine and Pharmacy, Bucharest, involved in the diagnosis and management of rare diseases, in research projects on rare diseases as vice-president and a representative of patient associations within the National Alliance for Rare Diseases, vice-president of Eurordis, ePAG chair ERN ITHACA as secretary.